Cauda Equina Syndrome
These articles are for general information only and are not medical advice. Full Disclaimer. All articles are compliments of the AAOS
Low back pain is common and usually goes away without surgery. But a rare disorder affecting the bundle of nerve roots (cauda equina) at the lower (lumbar) end of the spinal cord is a surgical emergency. An extension of the brain, the nerve roots send and receive messages to and from the pelvic organs and lower limbs. Cauda equina syndrome (CES) occurs when the nerve roots are compressed and paralyzed, cutting off sensation and movement. Nerve roots that control the function of the bladder and bowel are especially vulnerable to damage.
If you don’t get fast treatment to relieve the pressure, CES may cause permanent paralysis, impaired bladder and/or bowel control, loss of sexual sensation, and other problems. Even if the problem gets treatment right away, you may not recover complete function.
CES may be caused by a ruptured disk, tumor, infection, fracture, or narrowing of the spinal canal. It may also happen because of a violent impact such as a car crash, fall from a significant height, or penetrating (i.e., gunshot, stab) injury. Children may be born with abnormalities that cause CES.
Diagnosis and Treatment
Although you need early treatment to prevent permanent problems, CES may be difficult to diagnose. Symptoms vary in intensity and may evolve slowly over time. See your doctor immediately if you have
- Bladder and/or bowel dysfunction, causing you to retain waste or be unable to hold it.
- Severe or progressive problems in the lower extremities including loss of or altered sensation between the legs, over the buttocks, inner thighs and back of legs (saddle area), and feet/heels.
- Pain, numbness or weakness spreading to one or both legs that may cause you to stumble or have difficulty getting up from a chair.
To diagnose CES, the doctor will probably evaluate your medical history, give you a physical examination and order multiple imaging studies.
Describe your overall health, when the symptoms of CES began and how they impact your activities.
The doctor assesses stability, sensation, strength, reflexes, alignment and motion. He or she may ask you to stand, sit, walk on your heels and toes, bend forward, backward and to the sides, and lift your legs while lying down. The doctor might check the tone and numbness of anal muscles. You may need blood tests.
You may get X-rays, MRIs (magnetic resonance imaging) and CAT scans (computerized tomography) to help the doctor see the problem.
If you have CES, you may need urgent surgery to remove the material that is pressing on the nerves. The surgery may prevent pressure on the nerves from reaching the point at which damage is irreversible.
Living with CES
Surgery won’t help if you already have permanent nerve damage. In this case, you can learn how to make living with CES more tolerable. Some suggestions:
- In addition to medical personnel, you may want to get help from an occupational therapist, social worker, continence advisor or sex therapist
- Involve your family in your care
- To learn all you can about managing the condition, you may want to join a CES support group
Managing Bladder and Bowel
Some bladder and bowel function is automatic, but the parts under voluntary control may be lost if you have CES. This means you may not know when you need to urinate or move your bowels, and/or you may not be able to eliminate waste normally. Some general recommendations for managing bladder and bowel dysfunction
Empty the bladder completely with a catheter 3-4 times each day. Drink plenty of fluids and practice regular personal hygiene to prevent urinary tract infections.
Check for the presence of waste regularly and clear the bowels with gloved hands. You may want to use glycerin suppositories or enemas to help empty the bowels. Use protective pads and pants to prevent leaks.